Sunday, September 26, 2010

Really, April since I last posted!

I just made the realization that it has been a few months since I last posted. Life seems to be traveling by fast. So fast in fact that another summer has come to an end and winter will be upon us. We spent Labor Day weekend at a Brain Tumor Family camp. While I wasn't real crazy about using my last long weekend of the summer to a Family camp it proved to be quite a good weekend. Lots of families like ours all seeking support from others going through the same things.

Prior to Camp we had met with Emma's Doctors because she has been having trouble with her leg. She has Pseudoarthrosis of the tibia which is brought on by the NF. This in short is a bad bone that once broke will not heal back into a union. If it does heal it will most likely become deformed. The bone has been bowing for some time and has now caused much pain in the ankle and tenderness in the leg itself. So through much discussion we have decided to amputate her led below the knee. We are doing this not to call it quits on trying but to give the the life that every kid should have. To date she has never gone sledding or played on the playground equipment with her friends at school. Gym class was always a sit on the sidelines "activity."  She will now have that chance once we get through all the recovery and her new "fake leg" as she puts it.